Final Dose of Ara-C chemo
On August 1, 2015 by Michelle LoveBJ received his final dose of high dose Ara-C around 8am this morning, and just a few minutes ago, got 3 Erwinia shots (112th, 113th, 114th lifetime Erwinia shots). One more hour to make sure he doesn’t have an allergic reaction to the Erwinia, and we get to go home! #BJStrong Read More
Deja vu
On July 31, 2015 by Michelle LoveBack at LCH for the same regimen as last week. He’s currently getting his 2nd 3-hour dose. Thankfully, BJ wasn’t as nauseated as last week, but he has already developed the Ara-C rash again. Hopefully this chemo will make a difference in his MRD. The week-long daily chemo (cytoxan and etoposide) he had a month Read More
Sleep my baby, sleep.
On July 31, 2015 by Michelle LoveJust sitting here watching him sleep. Listening to him breathe. I think he may be dreaming, and I wonder if he’s running to catch a football or making that 3 pointer, or reeling in that 20 pound flounder… just having a normal summer like any other 14 year old kid, carefree and happy….Sleep my baby Read More
He doesn’t realize how tough he is
On July 28, 2015 by Michelle LoveBJ had a rough weekend. Every few hours, day and night, he needed eye drops, Zofran or Atarax. He finally felt like eating something Sunday afternoon, but that was curbed by nausea. This morning, he still felt very weak, and standing for short period of time was exhausting for him. At the clinic today, he Read More
High dose Ara-C chemo
On July 24, 2015 by Michelle LoveToday, BJ is halfway through an intense in-patient chemo infusion schedule that started yesterday evening. He’s getting high dose Ara-C, which infuses for 3 hours every 12 hours, for four doses. He was struggling in the early hours this morning with extreme nausea and chills. The side effects on this medication are pretty rough. It will Read More
Weekend by the shore
On July 19, 2015 by Michelle LoveWe took a short weekend trip to the beach. BJ’s counts were high enough for him to be able to go, and enjoy spending the weekend by the shore. His allergic reaction to the medication started getting better, although he was still itching all weekend. Thanks to a prescription for Atarax, it was tolerable. Today, Read More
He caught the big one, just like he promised he would!
On July 15, 2015 by Michelle LoveIt’s been a very, very hard two weeks for BJ. While he was getting blood on Wednesday the 8th, he started experiencing slurred speech and weakness on his right side. The medical team flocked to him and the consensus was that this was not a reaction to the blood, but rather most likely due to Read More
Spinal headache
On July 3, 2015 by Michelle LoveLast day of these all day, all week chemo infusions! We are back on LCH 11 for the day, and were happy that one of our favorite nurses has BJ today. BJ is struggling with a spinal tap headache, and just isn’t feeling very good. He’s not really complaining about anything, but he grabs his Read More
11% is too much
On July 2, 2015 by Michelle LoveOn June 22, BJ had a bone marrow biopsy. It marked one month from his relapse diagnosis. We have been hoping that the past month of induction cycle chemo had wiped out most (preferably all) of the blast cells in his marrow. At his relapse, 70% of his marrow were blast cells, and after a Read More
Erwinia Shots – 3 at a time
On June 26, 2015 by Michelle LoveBJ got the last 3 of his 45 Erwinia shots today! We’re SO happy that is over! He’s also finally feeling better from his procedures on Monday. His counts are where they need to be, so he’s starting up with the next Induction cycle bright and early Monday morning with a spinal tap with intrathecal Read More
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