Need a bigger bed
On June 22, 2015 by Michelle LoveToday, while we were waiting for BJ to be taken back to the procedure room. Yep… His entire foot is off the end of the bed! Read More
Spinal tap headache
On June 13, 2015 by Michelle LoveBJ has been feeling pretty good, except for a headache that developed from the spinal tap he had Monday. He had 3 shots on Wednesday, and 3 more on Friday – 27 shots in the past 3 weeks. His legs are sore, so to combat the muscle breakdown from the chemo, we’re trying to get Read More
Peer encouragement
On June 13, 2015 by Michelle LoveBJ has SO much support from his classmates from North Lincoln Middle School. I received an email from his teacher letting me know that there was a box in the office for BJ. BJ opened it to find a 3 ring binder full of notes, handmade cards and drawings from 8th grade students at NLMS. Read More
Strength and Faith
On June 8, 2015 by Michelle LoveMy son. He just confounds me sometimes. He’s seen me having a really hard time with all of this, even though I try my best to hide it. We were just talking, and he said that he hadn’t researched all of this like I had, so it wasn’t bothering him as much. He seemed so calm Read More
Finding a match
On June 8, 2015 by Michelle LoveBack at the clinic/hospital today. BJ has a spinal tap with intrathecal chemo, a chemo infusion, and 3 more chemo shots. His red and white blood cell counts have dropped, and are very low. The level of measuring his immune system, the absolute neutrophil count (ANC) is extremely low at 70. He says he feels Read More
Kure Beach
On June 8, 2015 by Michelle LoveBJ needed platelets on Friday, before his 3 shots could be given. His count needed to be 30,000, but it was 17,000, so they gave him a unit of platelets. We headed to the beach after BJ’s clinic appointment. We all needed some time away, and the beach is the place we all love to be. BJ Read More
“People have it worse off than me”
On June 3, 2015 by Michelle LoveUpdate from the past few days… BJ had a good weekend, and felt pretty good. He was able to watch Carly’s gymnastics competition, and go to church Sunday. Yesterday, we were back at the clinic for 3 more Erwinia shots. He did well with those too. His appetite is raging, due to the 75mg of prednisone he Read More
BJ STRONG!!
On May 31, 2015 by Michelle LoveReminding myself just how strong my kid really is! This was recorded 10 months after his initial diagnosis, during some pretty rough chemo treatments. He couldn’t wait to get back out on the football field with his team, so when conditioning training began, he wanted to go work out. He is the bad ass bald Read More
Erwinia Asparaginase shots
On May 30, 2015 by Michelle LoveBJ had his Erwinia shots again this morning. He really did great. He sure is tough. The needle is big and the medicine burns going into his muscle. He’s already had 9 shots so far. Each one has left it’s mark on his thighs. He’s counting down…36 more shots to go over the next 4 weeks. #CureForBJRound2 Read More
Pizza for breakfast
On May 28, 2015 by Michelle LoveBJ had a better night Tuesday, but woke up not feeling well yesterday. He started feeling better later morning, and ate a slice of pizza for breakfast. Labs were looking good, and there was no blast cells in his peripheral blood yesterday. He received his 3 Erwinia shots, and after monitoring him for a hour, we Read More
Recent Comments