One Decision. The Beginning of the End…One Year Ago
On May 22, 2016 by Michelle LoveOne year ago today, BJ had a normal monthly chemo infusion visit to Levine Pediatric Hematology Oncology clinic. On the way there, we talked about how exciting it was to be down to single digit clinic visits until the marked end of treatment (1/4/2016). It had been a long road and we were finally beginning Read More
All Things. All Things. All Things.
On May 5, 2016 by Michelle Love“My life is but a weaving, between the Lord and me; I cannot choose the colors. He worketh steadily. Oft times, He weaveth sorrow, and I in foolish pride, forget He sees the upper and I the underside. Not till the loom is silent, and the shuttles cease to fly, shall God unroll the canvas Read More
What’s the Plan?!
On March 28, 2016 by Michelle LoveHe didn’t save BJ. He didn’t heal him in the way we thought He would, or even thought He should. It’s been 3 weeks now. I’ve never been so broken or felt so lost. I’ve been sad, and distraught, and solemn and sullen. I’ve had fleeting moments of laughter with no tears, and laughter through Read More
Headed home…Saturday, February 20, 2016
On February 20, 2016 by Michelle LoveSaturday, February 20, 2016 After 90 consecutive days in the hospital, we will be going home today with the support of Kids Path. That is the kid’s version of hospice. I hate that word and what it means to me as a mom of the most amazing son, and to Carly, who adores her big Read More
The End of Blinatumomab
On February 17, 2016 by Michelle LoveWednesday, February 18, 2016 Blinatumomab has been taken down. BJ is headed down shortly for a CT scan of his sinuses and chest. Doc will come back to talk after the scans are read. Not really liking the stoic faces this morning. Praying. So the CT scan showed lots of enlarged lymph nodes throughout his Read More
68 days inpatient – Tuesday, January 26, 2016
On January 27, 2016 by Michelle LoveTuesday, January 26, 2016…68 days in the hospital I hope the blinatumomab is kicking leukemia’s butt as hard as it’s kicking BJ’s. Over the past few days, he has had fevers, feels achy all over, having joint pain, and just feels bad. He is on a liter of oxygen, and has had several blood and Read More
Monday, December 21, 2015….32nd day in the hospital
On December 22, 2015 by Michelle LoveMonday, December 21, 2015….32nd day in the hospital BJ is still struggling with the neuropathic foot pain off and on all day and night. They increased his dose of Methadone and started Cymbalta, which has helped other kids with this type of pain. He also received another dose of Neupogen tonight. A larger room opened Read More
Encouragement from a co-worker
On November 11, 2015 by Michelle LoveThe below is part of a text I received this morning from a co-worker. I am so incredibly blessed to have people like this in my life. Throughout the past 3 years, my Medic co-workers have been a great source of strength and support. I hope this encourages someone else today too… Sometimes, even as Read More
Strength and Faith
On June 8, 2015 by Michelle LoveMy son. He just confounds me sometimes. He’s seen me having a really hard time with all of this, even though I try my best to hide it. We were just talking, and he said that he hadn’t researched all of this like I had, so it wasn’t bothering him as much. He seemed so calm Read More
Not by Sight
On June 6, 2015 by Michelle LoveWhen I’m brokenhearted, stumble in my faith, hang my head and ask God why….I’m reminded to always walk by faith and not by sight. Read More
Recent Comments