Need a bigger bed
On June 22, 2015 by Michelle LoveToday, while we were waiting for BJ to be taken back to the procedure room. Yep… His entire foot is off the end of the bed! Read More
Anesthesia Anger
On June 22, 2015 by Michelle LoveI just watched BJ go under anesthesia again….I can’t even count how many times I’ve been beside him and watched him lose that fight and go to sleep. It never gets easier to stand there and watch that, and then turn away and leave him there while I wait in another room. He’s having an LP Read More
Friend time is treasured
On June 22, 2015 by Michelle LoveBJ had a pretty good weekend. Even though he tires easily, he felt ok, and was able to spend some much needed normal-kid-time with his best friend. Saturday was his final doses of prednisone for this treatment cycle, and he is beginning to notice the difference of getting it out of his system. His blood counts Read More
Spinal tap headache
On June 13, 2015 by Michelle LoveBJ has been feeling pretty good, except for a headache that developed from the spinal tap he had Monday. He had 3 shots on Wednesday, and 3 more on Friday – 27 shots in the past 3 weeks. His legs are sore, so to combat the muscle breakdown from the chemo, we’re trying to get Read More
Peer encouragement
On June 13, 2015 by Michelle LoveBJ has SO much support from his classmates from North Lincoln Middle School. I received an email from his teacher letting me know that there was a box in the office for BJ. BJ opened it to find a 3 ring binder full of notes, handmade cards and drawings from 8th grade students at NLMS. Read More
Can you help me shave my hair?
On June 13, 2015 by Michelle LoveBJ left me a note on the doorframe of his room Thursday night. Friday morning, when I went to wake him up, I found the note, and then quietly went back to my room to cry. Hair is such a trivial thing in the grand scheme of things, but it’s also a normality, one that at some Read More
Strength and Faith
On June 8, 2015 by Michelle LoveMy son. He just confounds me sometimes. He’s seen me having a really hard time with all of this, even though I try my best to hide it. We were just talking, and he said that he hadn’t researched all of this like I had, so it wasn’t bothering him as much. He seemed so calm Read More
Finding a match
On June 8, 2015 by Michelle LoveBack at the clinic/hospital today. BJ has a spinal tap with intrathecal chemo, a chemo infusion, and 3 more chemo shots. His red and white blood cell counts have dropped, and are very low. The level of measuring his immune system, the absolute neutrophil count (ANC) is extremely low at 70. He says he feels Read More
Kure Beach
On June 8, 2015 by Michelle LoveBJ needed platelets on Friday, before his 3 shots could be given. His count needed to be 30,000, but it was 17,000, so they gave him a unit of platelets. We headed to the beach after BJ’s clinic appointment. We all needed some time away, and the beach is the place we all love to be. BJ Read More
Not by Sight
On June 6, 2015 by Michelle LoveWhen I’m brokenhearted, stumble in my faith, hang my head and ask God why….I’m reminded to always walk by faith and not by sight. Read More
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