Tuesday, Nov 24, 2015 (Day 19 from CART cell infusion)
On November 25, 2015 by Michelle LoveTuesday (Day 19 from CART cell infusion) …. Last night was a little better than the night before. It’s nice to see some improvement, no matter how small. BJ’s body is still working hard. His fever went up to and a little over 106 degrees again. He got a unit of platelets last night, and Read More
Monday, Nov 23, 2015 (Day 18 from CART cell infusion)
On November 24, 2015 by Michelle LoveMonday (Day 18 from CART cell infusion) … BJ had a rough night last night. His confusion and agitation with everything increases at night. He’s very unsteady and weak, so he needs help getting up, and help walking to the bathroom (for balance), but he wants to do everything by himself. He’s got super strength, Read More
Sunday, Nov 22, 2015 (Day 17 from CART cell infusion)
On November 22, 2015 by Michelle LoveSunday (Day 17 from CART cell infusion)… It was an exciting 2am lab report this morning when I saw that BJ’s white blood cell count was down to 22.6k!! BJ is still in the middle of a violent struggle between two strong forces, and he isn’t aware of his numbers yet. I told him, but Read More
2:36am EXCITEMENT
On November 22, 2015 by Michelle Love22.6k white blood cells!!!!! 22.6k!!!!! This is AWESOME!!!! Thank you all so much for your prayers!!! It’s working!! We waited and it’s working!!!!! Thank you Jesus!!! Keep the prayers coming please!! He still has a long way to go but we will get there!! #CureForBJRound2 #BJStrong #Fight #cancersucks #cart19 #NoMoreSleepingTonightIWannaDance!!!! Read More
Saturday, November 21, 2015 (Day 16) update
On November 22, 2015 by Michelle LoveSaturday (Day 16) update: With the awesomeness of yesterday’s noon labs, I was anxiously waiting for the results from the midnight blood draw. My heart started pounding when the nurse came in around 2am with the print-out. His white blood cell count (WBC) was 45.8k. I took a deep breath, and thought..Well, OK. Just breathe. Read More
November 20, 2015 The roller coaster ride continues
On November 21, 2015 by Michelle LoveWhat a roller coaster we’ve been on lately. This is going to be a bit long, but totally worth the read. I promise. On Wednesday (Day 13 from cell infusion), BJ’s white blood cell (WBC) count went up to 72k. His doctor came to talk to us about it, and was very pessimistic about the Read More
Remembering: “Cancer Made Me Stronger”
On November 19, 2015 by Michelle LoveI pull up this video every now and then, just to remind myself that we have survived the past 3 years, and we will continue to press forward until all of BJ’s cancer is gone. A memory is attached to every picture, and picture after picture, all these memories pile on top of each other Read More
High Temps – November 17, 2015
On November 18, 2015 by Michelle LoveBJ is still cooking. His temp goes up and down all day and night, still reaching 104, and down to 100. His white blood cell count fluctuates between blood draws at midnight and noon. His WBC count at midnight last night was 60k, and at noon today it was 42k. We want to see that Read More
CART-19 Clinical Trial Explanation from MainLineToday.com
On November 16, 2015 by Michelle LoveThis article is a very good, short and non-technical explanation of the clinical trial that BJ is on.Breakthrough-in-Leukemia-from-Penn-Medicine-and-CHOP CART-19: A Leukemia Breakthrough A Main Line Doctor leads the Penn Medicine research team. BY MELISSA JACOBS Dr. Carl June’s children call him the “Mouse Doctor.” “People would ask them what kind of doctor I am,” says Read More
The Warrior Battles The Cytokine Storm, Day 3
On November 15, 2015 by Michelle LoveUpdate on BJ…Over the past 36 hours, BJ has kept a fever between 102 and 105. Friday night into Saturday morning was rough, as his temp kept climbing, and we were anxious about how bad this was going to be, and how his body would respond. Tylenol was given every 6 hours, but did not Read More
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