10/20/12 update
On October 20, 2012 by Michelle LoveWe went to the clinic yesterday and they accessed BJ’s port to draw blood and start him on IV fluids. We had to wait for the lab work to come back, because now, his treatment is dependent on his counts. His counts came back and they were too low to begin treatment. So, we will try Read More
10/15/2012 update
On October 15, 2012 by Michelle LoveBJ has been really tired the past few days. He barely came out of his room. His back is still very sore from the bone marrow aspiration, and it makes it hard for him to get comfortable. It’s eased up a little today, but is still sore. Read More
Day 29… Last day of phase 1 treatment
On October 12, 2012 by Michelle LoveBJ was very nervous about today, but it came and he did really well. He had a spinal tap with chemo and a bone marrow aspiration. He did well with the anesthesia. From today’s results that we will get back later next week, we will know if he’s in remission and what his MRD (minimum residual disease) Read More
Day 25 of 29 days of Induction
On October 8, 2012 by Michelle LoveBJ was very tired all weekend. He finally felt like getting up and taking a shower yesterday afternoon. He wanted a hair cut, so we went outside and I cut his hair. It’s really starting to fall out now. He doesn’t seem too concerned, but I know it will bother him when it’s gone. Right now, he Read More
Hanging on to Hair
On October 8, 2012 by Michelle LoveBJ’s hair is really starting to fall out now. He wanted a hair cut yesterday, so we went out on the deck, and I gave him a hair cut. I know hair shouldn’t be all that important, but it is. It deeply pains me to think about him losing all his hair. I know he’ll Read More
Day 23….
On October 6, 2012 by Michelle LoveBJ got to come home this afternoon!! We were so excited! He did a wheelie in the wheelchair on the way out of the hospital. No offense to the awesome nursing staff at Levine’s but we were so ready to bust that joint! Hopefully the rest of this induction phase is uneventful. His next scheduled appointment Read More
Day 22 of 29 days of Induction
On October 5, 2012 by Michelle LoveWe’ve been at the hospital all day, and going to stay another night. It’s not the news we wanted to hear, but they wanted to keep BJ because his ANC had went down from yesterday. He hasn’t had any more fevers since yesterday morning; and after 24 hours, the culture shows no infection. They’ll keep checking Read More
Day 21…..
On October 5, 2012 by Michelle LoveThursday was day 21, and we are back in the hospital again. Hopefully it’s a short stay this time. We’re here because BJ developed a fever. Fevers are concerning because it could mean that he has an infection brewing. He’s on such a high dose of prednisone, which is an anti-inflammatory drug, and because a Read More
Day 20 of 29 Days of Induction
On October 3, 2012 by Michelle LoveIt’s Wednesday, day 20 of the first phase of treatment that lasts for 29 days. The next phases of treatment are actually harder that this first phase. The next one is 4 weeks of chemo given in the spinal fluid, plus another type that will be given by shot at home (because we are able Read More
Does it really have to be a fight against everybody?
On September 30, 2012 by Michelle LoveFriday, 9/28 was a very stressful day. I’m sure more things could have gone wrong, but it felt like everything that could have gone wrong, did. We had an appointment for BJ’s chemo treatment at 0930. At 0730, BJ woke up, was very dizzy and very pale. It got worse after we checked his blood Read More
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