Interim Maintenance phase is almost over!
On March 4, 2013 by Michelle LoveBJ was back at the clinic this past Thursday, a day earlier than usual, in the event that he would finally make the count requirements and get the last part of Interim Maintenance started, and he wouldn’t be in the hospital on his birthday. This last treatment had been delayed two weeks because his counts Read More
Happy 12th birthday to BJ
On March 4, 2013 by Michelle LoveToday is BJ’s 12th birthday. Thank you God for letting me be BJ’s mom. He’s such a great kid. Even before the leukemia diagnosis, he was an awesome kid. But now, just being here every day with him, and seeing him through the good days and bad days, and horrible days, I see he’s so much Read More
2/15/13 update – counts are too low
On February 15, 2013 by Michelle LoveBJ had his clinic visit this morning and did not make the count requirements for the last high dose chemo 60 hour hospital stay. We were all prepared to get this last one done, but we’ll wait another week and see if he can finish up the last treatment of this phase. Read More
January update
On February 6, 2013 by Michelle LoveIt’s been a while since I’ve written here. Overall, BJ has been doing pretty well.BJ is still in the Interim Maintenance phase of treatment. Two weeks ago (1/18/13), he made count requirements (ANC and Platelet levels), and was admitted directly to the hospital for the infusion of chemo drugs, including the high dose methotrexate that Read More
1/4/2013…New Year, New Treatment Phase Began
On January 4, 2013 by Michelle Love2013 brings in new hopes, dreams, and a new 60-day treatment phase called Interim Maintenance for BJ. He made the count requirements Friday, 1/4, so he was taken over to the hospital to get a spinal tap with chemo. After he woke up in recovery, he was admitted into the children’s hospital. Once he had enough IV Read More
Christmas update – ANC is 60
On December 27, 2012 by Michelle LoveWe hope you all had a nice Christmas. BJ felt pretty good, but as he likes to say…His immune system is on Christmas Break. His ANC is 60…extreme neutropenia, which means he won’t be able to fight off anything. He finished this set of shots yesterday, but will have to have them again in a later phase. Read More
12/17/2012 update
On December 17, 2012 by Michelle LoveBJ had clinic on Friday, and we were back to the clinic yesterday for 2 more IM chemo shots. They pre-medicate him with IV benedryl, which causes him to feel real dizzy. The benedryl goes in and we wait while the chemo is made in the pharmacy downstairs. We tried the “freeze spray” as additional Read More
For BJ…
On December 13, 2012 by Michelle LoveYou are not alone my child Your body is broken but you will pull through This pain will only last for a while And you will be yourself again real soon. Your smile warms my soul And the depth of your strength is vast! Your laughter sheds light into this hole And your determination to Read More
12/12/12 update – He loves to make people laugh
On December 12, 2012 by Michelle LoveBJ got his scheduled chemo this past Friday and did well with it. He’s still nauseated off and on but doing well this week. He had everyone laughing again at clinic with his choice of blue mustache and Tarheel Santa hat. I love when his personality shines through! He’s very anxious about this Friday, when he Read More
11/30/2012 Day 29…Part 2 of Consolidation Phase
On November 30, 2012 by Michelle LoveYesterday became Day 29 of the Consolidation phase. BJ’s counts were high enough to start the last half of this phase. One of the chemo drugs he was given required infusion of IV fluids before getting the drug, and continued for 6 hours afterward. So, we were at the clinic/hospital for 10 1/2 hours yesterday. He was Read More
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