A little bit of JOY
On July 17, 2015 by Michelle LoveIt just seems like BJ can’t catch a break. His face started itching some in the hospital, but by Tuesday, his face, neck and shoulders were covered in a bad rash. 50mg of benadryl didn’t do anything but knock the edge of the itching, but it came right back. The only thing new was the seizure Read More
He caught the big one, just like he promised he would!
On July 15, 2015 by Michelle LoveIt’s been a very, very hard two weeks for BJ. While he was getting blood on Wednesday the 8th, he started experiencing slurred speech and weakness on his right side. The medical team flocked to him and the consensus was that this was not a reaction to the blood, but rather most likely due to Read More
Post from BJ’s 6th grade teacher, Mrs. Jackson
On July 15, 2015 by Michelle LovePlease pray for BJ! Three years ago, at the beginning of his 6th grade year, BJ entered my classroom one morning looking pale. I asked if he felt ok, and he said yes. The next day he looked even more pale, and had bruises on his arms. I asked again if he felt ok, and Read More
Methotrexate Toxicity
On July 9, 2015 by Michelle LoveAfter being admitted yesterday, BJ had an EEG showing no seizure activity. They came and got us at 2am this morning for his MRI, which showed the methotrexate toxicity that they had expected. By this morning, he woke up feeling much better than yesterday, and the weakness had resolved. His headache is gone, and I think Read More
Going for blood
On July 8, 2015 by Michelle LoveI talked to our nurse coordinator late yesterday and the doctor wanted to see BJ today based on his extended severe headache and being so tired. He’s been getting fluids this morning and when his lab work came back, all of his blood counts had dropped considerably since Monday’s visit. His hemoglobin was low which Read More
Car Naps :)
On July 8, 2015 by Michelle LoveRough night, early morning and these 2 slept on the way to the clinic this morning. I called in yesterday and the doctor wanted to see BJ today based on his extended severe headache and being so tired. He’s been getting fluids this morning and when his lab work came back, all of his blood counts Read More
Headache for days
On July 8, 2015 by Michelle LoveFinally tonight, BJ seems to be feeling just a little better. He has been struggling with a massive headache that started a week ago after his last spinal tap. Anytime he stands up, he grabs his head and winces. He spent most of the weekend in bed, or on the couch, and his appetite has Read More
Spinal headache
On July 3, 2015 by Michelle LoveLast day of these all day, all week chemo infusions! We are back on LCH 11 for the day, and were happy that one of our favorite nurses has BJ today. BJ is struggling with a spinal tap headache, and just isn’t feeling very good. He’s not really complaining about anything, but he grabs his Read More
11% is too much
On July 2, 2015 by Michelle LoveOn June 22, BJ had a bone marrow biopsy. It marked one month from his relapse diagnosis. We have been hoping that the past month of induction cycle chemo had wiped out most (preferably all) of the blast cells in his marrow. At his relapse, 70% of his marrow were blast cells, and after a Read More
The Real Superhero
On June 29, 2015 by Michelle LoveIt’s been an extra early and extra long day for BJ. He started off with blood drawn, IV fluids, physical exam, and then over to LCH for a spinal tap with intrathecal chemo. Then he was wheeled back over to the clinic for 2 chemo infusions and more fluids…and finally something to eat!! It’ll end Read More
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