Canceled “Wish” trip – Wednesday, January 27, 2016
On January 28, 2016 by Michelle LoveWednesday, January 27, 2016…67 days in the hospital BJ was moved to the PICU this morning at 0630, and his increased (tripled) dose of blinatumomab began about 1030. He had pushed his oxygen off around 0330 this morning, and his sats didn’t decrease. The nasal cannula was left on the top of his head where Read More
68 days inpatient – Tuesday, January 26, 2016
On January 27, 2016 by Michelle LoveTuesday, January 26, 2016…68 days in the hospital I hope the blinatumomab is kicking leukemia’s butt as hard as it’s kicking BJ’s. Over the past few days, he has had fevers, feels achy all over, having joint pain, and just feels bad. He is on a liter of oxygen, and has had several blood and Read More
Systemic blood infection – Saturday, January 23, 2016
On January 24, 2016 by Michelle LoveSaturday, January 23, 2016…65 days in the hospital BJ was moved back to the 11th floor late yesterday afternoon. He has continued spiking fevers of up to 103.3 today. His blood cultures from both his port and PICC lines grew bacteria, so doctors conclude that he has systemic infection in his blood stream. He has Read More
64 days inpatient – Friday, January 22, 2016
On January 22, 2016 by Michelle LoveFriday, January 22, 2016…64 days in the hospital BJ has been feeling good since the continuous blinatumomab infusion began Wednesday. He was awakened every 2 hours Wednesday night for neuro checks and vitals, so he was very tired yesterday. Yesterday evening, he spiked a fever of 101.5. Blood was drawn from his port and from Read More
Day 1 of Blinatumomab treatment – Wednesday, January 20, 2016
On January 20, 2016 by Michelle LoveWednesday, January 20, 2016……62 days in the hospital…..Day 1 of Blinatumomab treatment Today is a big day. BJ was moved to the PICU room this morning. The new immunotherapy, blinatumomab, started about 11am. They will monitor him closely for the next few days for any side effects. The infusion is continuous and is running through Read More
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