Difficult day all around – Monday, January 4, 2016
On January 5, 2016 by Michelle LoveMonday, January 4, 2016…46 days in the hospital. Today was another tough day. BJ was nauseated from early this morning until this evening. He’s also spiking fevers again. This afternoon it was 102.6. His breathing also became more labored and shallow. His breath sounds in his right lung became more diminished throughout the day. His Read More
Constant Nausea – Sunday, January 3, 2016
On January 3, 2016 by Michelle LoveSunday, January 3, 2016…45 days in the hospital What a rough night and day. BJ was extremely nauseated and vomited several times through the night and day today. He is really over all of this. The constant nausea, day after day, is overwhelming. When the Pediatric Surgeons came to check on him this morning, they Read More
A visit with Charlie Brown – Friday, January 1, 2016
On January 2, 2016 by Michelle LoveFriday, January 1, 2016…43 days in the hospital Not a great day. Late last night and again early this morning, BJ was nauseated and vomited. He felt rough all day, and didn’t get up at all. His total bilirubin is slightly down from yesterday, to 2.6. He needed a platelet transfusion today. His hemoglobin got a Read More
ERCP Surgery – Tuesday, December 29, 2015
On December 30, 2015 by Michelle LoveTuesday, December 29, 2015…40 days in the hospital Not much sleep and an early wake up and transport down to the Endoscopy unit in the adult side of the hospital made a rough start to the day. BJ had a platelet transfusion around 5am, and then another unit was hung to drip during the procedure. Read More
3/23/2013 update and BJ is still BJ :)
On March 23, 2013 by Michelle LoveBJ has felt pretty good the past 2 weeks. He had a break from chemotherapy and his counts came back up, which was great! He began the next phase of treatment yesterday, called Delayed Intensification. This phase will last about 2 months. We went to the clinic, and his blood counts (although much lower than last Read More
11/30/2012 Day 29…Part 2 of Consolidation Phase
On November 30, 2012 by Michelle LoveYesterday became Day 29 of the Consolidation phase. BJ’s counts were high enough to start the last half of this phase. One of the chemo drugs he was given required infusion of IV fluids before getting the drug, and continued for 6 hours afterward. So, we were at the clinic/hospital for 10 1/2 hours yesterday. He was Read More
11/2/2012 update …week 2 of Consolidation
On November 3, 2012 by Michelle LoveYesterday was clinic/hospital day for BJ again. He woke up feeling pretty bad, and it continued all day. He got his port accessed and received chemo in the clinic office, and was later taken over to the hospital for his spinal tap with chemo. He felt even worse after waking up from the anesthesia. The nausea from the Read More
Day 14 of 29 Day Induction Phase
On September 27, 2012 by Michelle LoveSo it was 2 weeks ago today that all this started. The past 2 weeks have felt like we were in a vacuum. Life goes on around us, and ours has dramatically changed and even thought it feels like a whirlwind, it’s also like moving in slow motion.I took BJ back to see the Endocrinologist Read More
Day 7 of 29
On September 20, 2012 by Michelle LoveHome. Best place in the world. I was up checking on BJ throughout the night, but it was still awesome being home. He slept pretty well, and when he woke up, we began what every day will start with… morning medications, and a blood sugar check. He was nauseated on and off throughout the day, and very tired, Read More
Day 2 of 29 day Induction Phase – Surgery for Port Placement
On September 16, 2012 by Michelle LoveBJ is getting an IV port surgically put into his chest today. It will be the site where they access his veins for drawing labs and transfusing the chemo drugs. He is scared. He’s never had any kind of surgery before and this port is supposed to stay in his chest for 3 years….as long Read More
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