Headed home…Saturday, February 20, 2016
On February 20, 2016 by Michelle LoveSaturday, February 20, 2016 After 90 consecutive days in the hospital, we will be going home today with the support of Kids Path. That is the kid’s version of hospice. I hate that word and what it means to me as a mom of the most amazing son, and to Carly, who adores her big Read More
DISCHARGED!!
On August 26, 2015 by Michelle LoveWith no fever since 0700 Tuesday and no oxygen required since 1700, and even without knowing exactly what type of fungus/mold caused his lung infection, BJ was DISCHARGED TODAY!!!! He will continue to take the antifungal medication which is obviously working, and go in for an exam Friday just to make sure he’s still progressing. Read More
We just want to go home
On August 14, 2015 by Michelle LoveThere are a couple of very frustrated people in this room! We want to go home! BJ isn’t getting discharged today, even though he hasn’t had a fever in over 48 hours. He’s still getting the IV antibiotic, and per protocol, he will continue to get it until he’s able to be discharged. They have Read More
Going HOME!
On August 1, 2015 by Michelle LoveGoing home!! See you next time LCH 11 family! Thank you for taking excellent care of BJ! ❤ Read More
Day 7 of 29
On September 20, 2012 by Michelle LoveHome. Best place in the world. I was up checking on BJ throughout the night, but it was still awesome being home. He slept pretty well, and when he woke up, we began what every day will start with… morning medications, and a blood sugar check. He was nauseated on and off throughout the day, and very tired, Read More
Day 4 of 29
On September 17, 2012 by Michelle LoveBJ was given some medicine to bring his potassium level down.That was one of the side effects of the meds he’s been given. Supposedly, it is very yucky tasting liquid, but BJ took it like a champ. The nurses were very impressed with him.We are so excited about the thoughts of going home tomorrow. BJ really misses Read More
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