Spinal tap headache
On June 13, 2015 by Michelle LoveBJ has been feeling pretty good, except for a headache that developed from the spinal tap he had Monday. He had 3 shots on Wednesday, and 3 more on Friday – 27 shots in the past 3 weeks. His legs are sore, so to combat the muscle breakdown from the chemo, we’re trying to get Read More
Peer encouragement
On June 13, 2015 by Michelle LoveBJ has SO much support from his classmates from North Lincoln Middle School. I received an email from his teacher letting me know that there was a box in the office for BJ. BJ opened it to find a 3 ring binder full of notes, handmade cards and drawings from 8th grade students at NLMS. Read More
Can you help me shave my hair?
On June 13, 2015 by Michelle LoveBJ left me a note on the doorframe of his room Thursday night. Friday morning, when I went to wake him up, I found the note, and then quietly went back to my room to cry. Hair is such a trivial thing in the grand scheme of things, but it’s also a normality, one that at some Read More
Strength and Faith
On June 8, 2015 by Michelle LoveMy son. He just confounds me sometimes. He’s seen me having a really hard time with all of this, even though I try my best to hide it. We were just talking, and he said that he hadn’t researched all of this like I had, so it wasn’t bothering him as much. He seemed so calm Read More
Finding a match
On June 8, 2015 by Michelle LoveBack at the clinic/hospital today. BJ has a spinal tap with intrathecal chemo, a chemo infusion, and 3 more chemo shots. His red and white blood cell counts have dropped, and are very low. The level of measuring his immune system, the absolute neutrophil count (ANC) is extremely low at 70. He says he feels Read More
Kure Beach
On June 8, 2015 by Michelle LoveBJ needed platelets on Friday, before his 3 shots could be given. His count needed to be 30,000, but it was 17,000, so they gave him a unit of platelets. We headed to the beach after BJ’s clinic appointment. We all needed some time away, and the beach is the place we all love to be. BJ Read More
Not by Sight
On June 6, 2015 by Michelle LoveWhen I’m brokenhearted, stumble in my faith, hang my head and ask God why….I’m reminded to always walk by faith and not by sight. Read More
Handfuls of hair
On June 5, 2015 by Michelle LoveZofran, platelets and 3 Erwinia shots. His hair is falling out by the handful, and still, his spirits are good. #CureForBJRound2 Read More
Intramuscular chemo shots really do hurt
On June 4, 2015 by Michelle LoveBJ doesn’t complain about much, but he told me tonight that his legs are sore. So far, he’s had 15 intramuscular chemo shots in the past 9 days. Looking at his legs, I honestly don’t know how he even stands up. #CureForBJRound2 Read More
Numbing help
On June 3, 2015 by Michelle LovePlatelet count was borderline, but enough to get the shots without a transfusion today! Good news as far as the time we have to spend here today. He will get a platelet transfusion Friday before shots #16, 17, & 18. There’s a new lidocaine patch on the market (since March), called Synera, that has made a Read More
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