More platelets
On September 21, 2015 by Michelle LoveAt our Levine hem/onc clinic this morning getting checked out. BJ has been feeling extremely worn down lately. Walking into the building from the parking deck has made his heart rate double what it normally is. His platelet count was 8k, so he will be getting a platelet transfusion this morning. That will help heal Read More
September 18, 2015
On September 18, 2015 by Michelle LoveBJ had a low fever last night but it went down on its own. He was discharged to go home this afternoon! His leukemia isn’t showing up in his peripheral blood today either, which is AWESOME, so the chemo he received on Wednesday has made a difference! His platelet level is getting pretty low, so Read More
September 17, 2015
On September 17, 2015 by Michelle LoveWhat a week this has been! We were at Duke on Monday and Tuesday for the initial portion of the CAR-T cell clinical trial. BJ’s white blood cells were collected on Monday. He had an early morning on Tuesday too, with fluids, anesthesia, a bone marrow biopsy and a spinal tap to collect a sample Read More
Tracks of a different kind
On September 16, 2015 by Michelle LoveBJ’s arms today…. #CureForBJRound2 #pheresis Read More
Quiet is the loudest time
On September 16, 2015 by Michelle LoveI really should be asleep but it’s nighttime.. and it’s quiet.. and this is when I hear all of thoughts in my head the loudest. This is when I feel the magnitude of the aching in my heart. The past 2 days have been exciting and scary and overwhelming and everything in between…and I’m just…exhausted Read More
First Bone Marrow Aspiration and Spinal Tap at Duke
On September 15, 2015 by Michelle LoveEverything went well with BJ’s first bone marrow aspiration and spinal tap here at Duke. Anesthesia has worn off and he’s awake, and ate his bagel. The ECG was done shortly after he woke up, so as soon as he can sit up, we can collect our things from the Ronald McDonald house and head Read More
September 15, 2015
On September 15, 2015 by Michelle LoveWe had another nice night at the Ronald McDonald House – Durham. BJ is feeling good this morning. There’s a little bruising on his left arm that was stuck twice, but it doesn’t look that bad. No food or drink since midnight last night and we are already back at Duke this morning for IV Read More
Pheresis of White Blood Cells
On September 15, 2015 by Michelle LoveThe pheresis just finished. BJ did great as always, even though they had a little trouble getting into his veins this morning. It was 16 gauge needles…very big. It hurt, but he breathed through it and stared into my eyes like he usually does when he’s nervous about something. It has taken 4 hours to Read More
Future Navy SEAL
On September 15, 2015 by Michelle LoveThis was super cool… A former Navy Seal sent BJ a package containing a Frogman tshirt, a challenge coin, a seal patch, and a Trident that he wore in battle. BJ was truly speechless. He wrote a note to BJ, and said when he gets his own Trident one day, he would take his back. He also said Read More
From a Mom’s Perspective
On September 7, 2015 by Michelle LoveI’m not usually the one to jump on facebook to complain about things, or say how bad I’m feeling, or how I’m on the edge of whatever… BUT. This is September. This is Childhood Cancer Awareness month. This is also Leukemia Awareness month, and it is also THE month 3 years ago that my normally healthy child was diagnosed Read More
Recent Comments