He is the storm!
On November 8, 2015 by Michelle LoveA dear friend sent this to me…said BJ immediately came to mind. I’d have to agree. He is the storm. Read More
GO Heels!
On November 7, 2015 by Michelle LoveHappy Saturday! We started it off with our traditional Saturday morning homemade pancake breakfast. BJ ate most of his double stack. He wasn’t feeling too great this morning and didn’t sleep very well again last night. We headed back over at the Valvano Day Hospital for lab check after breakfast this morning. Looks like we’ll Read More
November 6, 2015, Day After T-Cell Infusion
On November 7, 2015 by Michelle LoveThe day after cell infusion update… BJ has felt pretty good today. He had a clinic appointment to check labs this afternoon and his hemoglobin and platelet counts were borderline for transfusion so he will have to go back tomorrow to check them again. He ate well today and even worked on some school work Read More
Our Duke Team
On November 6, 2015 by Michelle LoveThis is the great team supporting BJ and us as he goes through this clinical trial. Much thanks to Jen, Jayne, Kristin, Dr. Martin, and Allie who all helped us get through this very emotional day. BJ is feeling ok tonight, just tired from a long day. He has to be back at the Duke Read More
200,000 Engineered Super-Cells
On November 5, 2015 by Michelle Love200,000 engineered super fighter cells inside that syringe were pushed into BJ’s IV line this morning. He’s very tired from the 50mg of benadryl given as pre-medication. As always, BJ brought his SEAL coins and Trident, and his other challenge coins. We felt the prayers that have surrounded us today. The 4 day stretch of Read More
Big Day Tomorrow
On November 4, 2015 by Michelle LoveThis boy. Back at Duke Children’s clinic this morning to check BJ’s blood counts and chemistry. His platelet count is 17k, so he will be getting a unit. He’s feeling pretty good today. Just look at that smile. I love it!! Tomorrow is the BIG day. BJ will get an infusion of his modified white Read More
Last Hopeful Drops
On November 2, 2015 by Michelle LoveGod willing, this will be the last drops of chemotherapy that BJ will ever get. #CureForBJRound2 #keeppounding #BJStrong #fighter #futureNavySEAL #FullOfHope Read More
Valvano Day Hospital on Sunday
On November 1, 2015 by Michelle LoveAnother early morning for BJ’s clinic appointment. It seems strange to be here on a Sunday, but the Valvano Day Hospital here is open all week. He had an infusion of the chemo drug fludarabine and is getting a unit of platelets. His platelet count today is 12k. He felt better last night after the Read More
Chemo for Halloween
On October 31, 2015 by Michelle LoveBack at Duke Children’s Health Center for another long day of fludarabine and cytoxan infusions and the required 4 hours of post-hydration. Before we left here yesterday, BJ got a 2nd unit of platelets. The first unit had only bumped his count to 13k, so it was still too low. He was very tired last Read More
October 30, 2015, Back in Durham
On October 30, 2015 by Michelle LoveWe’re back in Durham, arriving late last night to the Ronald McDonald House. BJ’s port has been leaking blood since being de-accessed yesterday for his platelet infusion. He’s had a port in his upper right chest since Sept 2012 when he was first diagnosed with Leukemia. ((Just a little description of what a port is…it’s Read More
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