11/2/2012 update …week 2 of Consolidation
On November 3, 2012 by Michelle LoveYesterday was clinic/hospital day for BJ again. He woke up feeling pretty bad, and it continued all day. He got his port accessed and received chemo in the clinic office, and was later taken over to the hospital for his spinal tap with chemo. He felt even worse after waking up from the anesthesia. The nausea from the Read More
10/26/12… Day 1 of Consolidation Phase
On October 26, 2012 by Michelle LoveBJ’s counts were up on Friday, so he was able to begin the next phase of treatment, called “Consolidation”. He had a spinal tap with chemo, and more chemo through his port. He did well with the anesthesia and the procedure, and after waiting in the recovery room for a couple of hours, he was finally Read More
10/23/12 update
On October 23, 2012 by Michelle LoveBJ is feeling better and even went outside for a while this weekend. On Sunday, he helped carve a huge pumpkin. He enjoyed cleaning the insides out and gathering up the seeds. Read More
Good news and not-so-good news
On October 20, 2012 by Michelle LoveFirst, the good news… BJ is in “remission”. Remission really just means that there are less than 5% of the leukemia blast cells inside his bone marrow. Typically, it’s good news to hear, but surely doesn’t mean he is out of the woods. The not-so-good news… BJ’s MRD is 0.09%, which is higher than we were Read More
10/20/12 update
On October 20, 2012 by Michelle LoveWe went to the clinic yesterday and they accessed BJ’s port to draw blood and start him on IV fluids. We had to wait for the lab work to come back, because now, his treatment is dependent on his counts. His counts came back and they were too low to begin treatment. So, we will try Read More
10/15/2012 update
On October 15, 2012 by Michelle LoveBJ has been really tired the past few days. He barely came out of his room. His back is still very sore from the bone marrow aspiration, and it makes it hard for him to get comfortable. It’s eased up a little today, but is still sore. Read More
Day 29… Last day of phase 1 treatment
On October 12, 2012 by Michelle LoveBJ was very nervous about today, but it came and he did really well. He had a spinal tap with chemo and a bone marrow aspiration. He did well with the anesthesia. From today’s results that we will get back later next week, we will know if he’s in remission and what his MRD (minimum residual disease) Read More
Day 25 of 29 days of Induction
On October 8, 2012 by Michelle LoveBJ was very tired all weekend. He finally felt like getting up and taking a shower yesterday afternoon. He wanted a hair cut, so we went outside and I cut his hair. It’s really starting to fall out now. He doesn’t seem too concerned, but I know it will bother him when it’s gone. Right now, he Read More
Day 23….
On October 6, 2012 by Michelle LoveBJ got to come home this afternoon!! We were so excited! He did a wheelie in the wheelchair on the way out of the hospital. No offense to the awesome nursing staff at Levine’s but we were so ready to bust that joint! Hopefully the rest of this induction phase is uneventful. His next scheduled appointment Read More
Day 22 of 29 days of Induction
On October 5, 2012 by Michelle LoveWe’ve been at the hospital all day, and going to stay another night. It’s not the news we wanted to hear, but they wanted to keep BJ because his ANC had went down from yesterday. He hasn’t had any more fevers since yesterday morning; and after 24 hours, the culture shows no infection. They’ll keep checking Read More
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