He doesn’t realize how tough he is
On July 28, 2015 by Michelle LoveBJ had a rough weekend. Every few hours, day and night, he needed eye drops, Zofran or Atarax. He finally felt like eating something Sunday afternoon, but that was curbed by nausea. This morning, he still felt very weak, and standing for short period of time was exhausting for him. At the clinic today, he Read More
High dose Ara-C chemo
On July 24, 2015 by Michelle LoveToday, BJ is halfway through an intense in-patient chemo infusion schedule that started yesterday evening. He’s getting high dose Ara-C, which infuses for 3 hours every 12 hours, for four doses. He was struggling in the early hours this morning with extreme nausea and chills. The side effects on this medication are pretty rough. It will Read More
Thanks Panther’s coach!
On July 20, 2015 by Michelle LoveMuch thanks to Carolina Panthers Head Coach, Ron Rivera, for putting a giant smile on my child’s face last week just when he needed it! #CureForBJRound2 #keeppounding #giveblood#BeTheMatch #NEGU#IamLCH #childhoodleukemia#childhoodcancer #morethan4 #mollyskids#panthers#RonRivera #BJStrong Read More
Bone Marrow Aspiration
On July 20, 2015 by Michelle LoveBJ is in the recovery room after having a bone marrow aspiration just a while ago. We are praying for the results of this biopsy to show that the presence of leukemia cells has decreased much lower than the 11% that were there last time. More prayers are so much appreciated…. #CureForBJRound2 #keeppounding #giveblood #BeTheMatch #NEGU#IamLCH #childhoodleukemia #childhoodcancer #morethan4 #mollyskids#BJStrong Read More
Weekend by the shore
On July 19, 2015 by Michelle LoveWe took a short weekend trip to the beach. BJ’s counts were high enough for him to be able to go, and enjoy spending the weekend by the shore. His allergic reaction to the medication started getting better, although he was still itching all weekend. Thanks to a prescription for Atarax, it was tolerable. Today, Read More
A little bit of JOY
On July 17, 2015 by Michelle LoveIt just seems like BJ can’t catch a break. His face started itching some in the hospital, but by Tuesday, his face, neck and shoulders were covered in a bad rash. 50mg of benadryl didn’t do anything but knock the edge of the itching, but it came right back. The only thing new was the seizure Read More
Methotrexate Toxicity
On July 9, 2015 by Michelle LoveAfter being admitted yesterday, BJ had an EEG showing no seizure activity. They came and got us at 2am this morning for his MRI, which showed the methotrexate toxicity that they had expected. By this morning, he woke up feeling much better than yesterday, and the weakness had resolved. His headache is gone, and I think Read More
Going for blood
On July 8, 2015 by Michelle LoveI talked to our nurse coordinator late yesterday and the doctor wanted to see BJ today based on his extended severe headache and being so tired. He’s been getting fluids this morning and when his lab work came back, all of his blood counts had dropped considerably since Monday’s visit. His hemoglobin was low which Read More
Car Naps :)
On July 8, 2015 by Michelle LoveRough night, early morning and these 2 slept on the way to the clinic this morning. I called in yesterday and the doctor wanted to see BJ today based on his extended severe headache and being so tired. He’s been getting fluids this morning and when his lab work came back, all of his blood counts Read More
Headache for days
On July 8, 2015 by Michelle LoveFinally tonight, BJ seems to be feeling just a little better. He has been struggling with a massive headache that started a week ago after his last spinal tap. Anytime he stands up, he grabs his head and winces. He spent most of the weekend in bed, or on the couch, and his appetite has Read More
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