More than 100.4 twice in 12 hours or 101.0 degrees
On August 12, 2015 by Michelle LoveBJ had a fever tonight so we’re back up at LCH. Hopefully this is a short stay! #CureForBJRound2 #keeppounding #giveblood #BeTheMatch #NEGU#IamLCH #childhoodleukemia #childhoodcancer #morethan4 #fighter#BJStrong #cancersucks #mollyskids Read More
BJ’s part in LLS 2015 Man of the Year
On August 10, 2015 by Michelle LoveEarlier this year, before his relapse, BJ was asked to record his story to be included in Damione Lewis’ video campaign for the Leukemia & Lymphoma Society’s 2015 Man of the Year. D-Lew won! BJ comes in the video around 2:14 #BJStrong #CureForBJRound2 #KeepPounding #GiveBlood #BeTheMatch#NEGU #childhoodleukemia #childhoodcancer #morethan4 #fighter#cancersucks Video – Damione Lewis for LLS Man of the Year 2015 Read More
Platelets and a former Panther’s football player
On August 10, 2015 by Michelle LoveSo THIS cool thing happened this morning! : Then BJ received a unit of platelets, for the 3rd time in the past 7 days. He’s feeling tired, and a little weak, but just look at that SMILE! Love it! Read More
Soup in the summer. Whatever he wants.
On August 10, 2015 by Michelle LoveBlood is amazing!!…the 2 units that BJ received on Thursday made him feel so much better. He’s still feeling weak, but he could walk a little further without getting short of breath and nauseated. Yesterday he said he thought it might be lower again because he was beginning to feel more tired and weak again. Read More
Blood and Platelets again
On August 6, 2015 by Michelle LoveBJ had an appointment this morning to check his blood counts. He is very weak. It is expected that he will need blood and platelets throughout the next few weeks. His platelet count was only 10,000 so he received a unit of platelets. (He just had a unit 4 days ago.) His hemoglobin was also Read More
Zero white blood cells and more platelets
On August 3, 2015 by Michelle LoveThe Ara-C from the last 2 weeks has done exactly what they expected it to do. Lab work from this morning showed that BJ’s white blood cell count is zero. For the next 3 weeks or so, we’ll be hypersensitive in checking for fevers and making sure he doesn’t get sick. He has no working Read More
Going HOME!
On August 1, 2015 by Michelle LoveGoing home!! See you next time LCH 11 family! Thank you for taking excellent care of BJ! ❤ Read More
Final Dose of Ara-C chemo
On August 1, 2015 by Michelle LoveBJ received his final dose of high dose Ara-C around 8am this morning, and just a few minutes ago, got 3 Erwinia shots (112th, 113th, 114th lifetime Erwinia shots). One more hour to make sure he doesn’t have an allergic reaction to the Erwinia, and we get to go home! #BJStrong Read More
Deja vu
On July 31, 2015 by Michelle LoveBack at LCH for the same regimen as last week. He’s currently getting his 2nd 3-hour dose. Thankfully, BJ wasn’t as nauseated as last week, but he has already developed the Ara-C rash again. Hopefully this chemo will make a difference in his MRD. The week-long daily chemo (cytoxan and etoposide) he had a month Read More
Sleep my baby, sleep.
On July 31, 2015 by Michelle LoveJust sitting here watching him sleep. Listening to him breathe. I think he may be dreaming, and I wonder if he’s running to catch a football or making that 3 pointer, or reeling in that 20 pound flounder… just having a normal summer like any other 14 year old kid, carefree and happy….Sleep my baby Read More
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