Big Day Tomorrow
On November 4, 2015 by Michelle LoveThis boy. Back at Duke Children’s clinic this morning to check BJ’s blood counts and chemistry. His platelet count is 17k, so he will be getting a unit. He’s feeling pretty good today. Just look at that smile. I love it!! Tomorrow is the BIG day. BJ will get an infusion of his modified white Read More
Last Hopeful Drops
On November 2, 2015 by Michelle LoveGod willing, this will be the last drops of chemotherapy that BJ will ever get. #CureForBJRound2 #keeppounding #BJStrong #fighter #futureNavySEAL #FullOfHope Read More
Valvano Day Hospital on Sunday
On November 1, 2015 by Michelle LoveAnother early morning for BJ’s clinic appointment. It seems strange to be here on a Sunday, but the Valvano Day Hospital here is open all week. He had an infusion of the chemo drug fludarabine and is getting a unit of platelets. His platelet count today is 12k. He felt better last night after the Read More
Chemo for Halloween
On October 31, 2015 by Michelle LoveBack at Duke Children’s Health Center for another long day of fludarabine and cytoxan infusions and the required 4 hours of post-hydration. Before we left here yesterday, BJ got a 2nd unit of platelets. The first unit had only bumped his count to 13k, so it was still too low. He was very tired last Read More
October 30, 2015, Back in Durham
On October 30, 2015 by Michelle LoveWe’re back in Durham, arriving late last night to the Ronald McDonald House. BJ’s port has been leaking blood since being de-accessed yesterday for his platelet infusion. He’s had a port in his upper right chest since Sept 2012 when he was first diagnosed with Leukemia. ((Just a little description of what a port is…it’s Read More
October 29, 2015
On October 29, 2015 by Michelle LoveBJ had a clinic appointment this morning to check his blood counts. His platelet count had dropped again, this time to 8k, so he is getting a platelet transfusion today. His white blood cell count is up to 1k today, and 22% of those are leukemia blast cells in his blood stream. He is also Read More
October 27, 2015
On October 27, 2015 by Michelle LoveGlad to be able to have good news! BJ has been much better today. His platelet count held steady, and he didn’t need a transfusion today. The CT scan he had late this afternoon showed marked improvement in his lungs from the last scan on Sept 5. This was wonderful news, because we’ve been wondering Read More
October 26, 2015 Clinic appointment at Duke
On October 26, 2015 by Michelle LoveBJ had a clinic appointment at Duke today for labs and baseline tests before the treatment portion of the trial. He still isn’t feeling well today. His platelet count had dropped again so he just finished getting a unit. He has lost 8 pounds since we were here last on 9/15. His lips are cracked Read More
October 24, 2015
On October 24, 2015 by Michelle LoveBJ was happy to get home yesterday. He actually ate half of a cheeseburger that Darrell grilled for dinner last night. That was more than he has eaten in the past 4 days combined. He is still very tired and the headache comes and goes, but is feeling better than earlier this week. He had Read More
Re-fuel Platelets
On October 23, 2015 by Michelle LoveBJ is getting tanked up on platelets again and then he will be discharged! His temp is has been consistently slightly elevated but staying below the 100.4 mark, so it’s technically not a fever that would keep him here. He hasn’t eaten, didn’t get much sleep again last night, and he’s still very tired, but Read More
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