High dose Ara-C chemo
On July 24, 2015 by Michelle LoveToday, BJ is halfway through an intense in-patient chemo infusion schedule that started yesterday evening. He’s getting high dose Ara-C, which infuses for 3 hours every 12 hours, for four doses. He was struggling in the early hours this morning with extreme nausea and chills. The side effects on this medication are pretty rough. It will Read More
Methotrexate Toxicity
On July 9, 2015 by Michelle LoveAfter being admitted yesterday, BJ had an EEG showing no seizure activity. They came and got us at 2am this morning for his MRI, which showed the methotrexate toxicity that they had expected. By this morning, he woke up feeling much better than yesterday, and the weakness had resolved. His headache is gone, and I think Read More
Erwinia Shots – 3 at a time
On June 26, 2015 by Michelle LoveBJ got the last 3 of his 45 Erwinia shots today! We’re SO happy that is over! He’s also finally feeling better from his procedures on Monday. His counts are where they need to be, so he’s starting up with the next Induction cycle bright and early Monday morning with a spinal tap with intrathecal Read More
Friend time is treasured
On June 22, 2015 by Michelle LoveBJ had a pretty good weekend. Even though he tires easily, he felt ok, and was able to spend some much needed normal-kid-time with his best friend. Saturday was his final doses of prednisone for this treatment cycle, and he is beginning to notice the difference of getting it out of his system. His blood counts Read More
Can you help me shave my hair?
On June 13, 2015 by Michelle LoveBJ left me a note on the doorframe of his room Thursday night. Friday morning, when I went to wake him up, I found the note, and then quietly went back to my room to cry. Hair is such a trivial thing in the grand scheme of things, but it’s also a normality, one that at some Read More
Handfuls of hair
On June 5, 2015 by Michelle LoveZofran, platelets and 3 Erwinia shots. His hair is falling out by the handful, and still, his spirits are good. #CureForBJRound2 Read More
Intramuscular chemo shots really do hurt
On June 4, 2015 by Michelle LoveBJ doesn’t complain about much, but he told me tonight that his legs are sore. So far, he’s had 15 intramuscular chemo shots in the past 9 days. Looking at his legs, I honestly don’t know how he even stands up. #CureForBJRound2 Read More
Numbing help
On June 3, 2015 by Michelle LovePlatelet count was borderline, but enough to get the shots without a transfusion today! Good news as far as the time we have to spend here today. He will get a platelet transfusion Friday before shots #16, 17, & 18. There’s a new lidocaine patch on the market (since March), called Synera, that has made a Read More
Erwinia Asparaginase shots
On May 30, 2015 by Michelle LoveBJ had his Erwinia shots again this morning. He really did great. He sure is tough. The needle is big and the medicine burns going into his muscle. He’s already had 9 shots so far. Each one has left it’s mark on his thighs. He’s counting down…36 more shots to go over the next 4 weeks. #CureForBJRound2 Read More
Pizza for breakfast
On May 28, 2015 by Michelle LoveBJ had a better night Tuesday, but woke up not feeling well yesterday. He started feeling better later morning, and ate a slice of pizza for breakfast. Labs were looking good, and there was no blast cells in his peripheral blood yesterday. He received his 3 Erwinia shots, and after monitoring him for a hour, we Read More
Recent Comments