The End of Blinatumomab
On February 17, 2016 by Michelle LoveWednesday, February 18, 2016 Blinatumomab has been taken down. BJ is headed down shortly for a CT scan of his sinuses and chest. Doc will come back to talk after the scans are read. Not really liking the stoic faces this morning. Praying. So the CT scan showed lots of enlarged lymph nodes throughout his Read More
Final hours of Blinatumomab – Tuesday, February 16, 2016
On February 17, 2016 by Michelle LoveTuesday, February 16, 2016…87 days in the hospital. Final hours left on blinatumomab treatment Tomorrow morning around 10am, the bag of blinatumomab will be taken down. BJ has been on this treatment for 28 days. A full cycle of blinatumomab is 35 days…28 on the treatment, and 7 days rest. He is scheduled for a Read More
Halfway through the blinatumomab treatment – Tuesday, February 2, 2016
On February 3, 2016 by Michelle LoveTuesday, February 2, 2016…73 days in the hospital. Halfway through the blinatumomab treatment BJ has had ups and downs over the past 2 days. He has felt ‘ok’, which for the rest of us would undoubtedly be defined as ‘really crummy’; and within the hour he’s feeling ‘really bad’…inconceivable for most of us. The nausea Read More
First uncontrollable nose bleed – 71 days inpatient – Sunday, January 31, 2016
On February 1, 2016 by Michelle LoveSunday, January 31, 2016…71 days in the hospital Yesterday was a first for BJ, and he stayed true to his motto of Go Big or Go home. His platelet count was 3k yesterday morning, so the team decided to transfuse a unit of platelets. The majority of the day was normal. We watched a few Read More
68 days inpatient – Tuesday, January 26, 2016
On January 27, 2016 by Michelle LoveTuesday, January 26, 2016…68 days in the hospital I hope the blinatumomab is kicking leukemia’s butt as hard as it’s kicking BJ’s. Over the past few days, he has had fevers, feels achy all over, having joint pain, and just feels bad. He is on a liter of oxygen, and has had several blood and Read More
Systemic blood infection – Saturday, January 23, 2016
On January 24, 2016 by Michelle LoveSaturday, January 23, 2016…65 days in the hospital BJ was moved back to the 11th floor late yesterday afternoon. He has continued spiking fevers of up to 103.3 today. His blood cultures from both his port and PICC lines grew bacteria, so doctors conclude that he has systemic infection in his blood stream. He has Read More
64 days inpatient – Friday, January 22, 2016
On January 22, 2016 by Michelle LoveFriday, January 22, 2016…64 days in the hospital BJ has been feeling good since the continuous blinatumomab infusion began Wednesday. He was awakened every 2 hours Wednesday night for neuro checks and vitals, so he was very tired yesterday. Yesterday evening, he spiked a fever of 101.5. Blood was drawn from his port and from Read More
Day 1 of Blinatumomab treatment – Wednesday, January 20, 2016
On January 20, 2016 by Michelle LoveWednesday, January 20, 2016……62 days in the hospital…..Day 1 of Blinatumomab treatment Today is a big day. BJ was moved to the PICU room this morning. The new immunotherapy, blinatumomab, started about 11am. They will monitor him closely for the next few days for any side effects. The infusion is continuous and is running through Read More
Time out for a Panthers Pep Rally – Friday, January 15, 2016
On January 16, 2016 by Michelle LoveFriday, January 15, 2016…57 days in the hospital We are witnessing God’s work every day. BJ had a CT scan this morning to see what his lungs look like now. Ten days ago, the CT scan showed devastating news. Today, the pleural effusion is almost gone in his lungs, and the 5cm mass in his Read More
Fast change in the cancer world
On September 14, 2015 by Michelle LoveThings change so fast when you’re dealing with cancer. Dr. Kaplan talked to BJ and I about “options” two weeks ago. There are two new therapies that would be possible options for BJ if they couldn’t get him to MRD negative. One was Blinatumomab (just received FDA approval Dec. 2014), which has been successful in Read More
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