January update
On February 6, 2013 by Michelle LoveIt’s been a while since I’ve written here. Overall, BJ has been doing pretty well.BJ is still in the Interim Maintenance phase of treatment. Two weeks ago (1/18/13), he made count requirements (ANC and Platelet levels), and was admitted directly to the hospital for the infusion of chemo drugs, including the high dose methotrexate that Read More
1/4/2013…New Year, New Treatment Phase Began
On January 4, 2013 by Michelle Love2013 brings in new hopes, dreams, and a new 60-day treatment phase called Interim Maintenance for BJ. He made the count requirements Friday, 1/4, so he was taken over to the hospital to get a spinal tap with chemo. After he woke up in recovery, he was admitted into the children’s hospital. Once he had enough IV Read More
Christmas update – ANC is 60
On December 27, 2012 by Michelle LoveWe hope you all had a nice Christmas. BJ felt pretty good, but as he likes to say…His immune system is on Christmas Break. His ANC is 60…extreme neutropenia, which means he won’t be able to fight off anything. He finished this set of shots yesterday, but will have to have them again in a later phase. Read More
12/17/2012 update
On December 17, 2012 by Michelle LoveBJ had clinic on Friday, and we were back to the clinic yesterday for 2 more IM chemo shots. They pre-medicate him with IV benedryl, which causes him to feel real dizzy. The benedryl goes in and we wait while the chemo is made in the pharmacy downstairs. We tried the “freeze spray” as additional Read More
For BJ…
On December 13, 2012 by Michelle LoveYou are not alone my child Your body is broken but you will pull through This pain will only last for a while And you will be yourself again real soon. Your smile warms my soul And the depth of your strength is vast! Your laughter sheds light into this hole And your determination to Read More
12/12/12 update – He loves to make people laugh
On December 12, 2012 by Michelle LoveBJ got his scheduled chemo this past Friday and did well with it. He’s still nauseated off and on but doing well this week. He had everyone laughing again at clinic with his choice of blue mustache and Tarheel Santa hat. I love when his personality shines through! He’s very anxious about this Friday, when he Read More
11/30/2012 Day 29…Part 2 of Consolidation Phase
On November 30, 2012 by Michelle LoveYesterday became Day 29 of the Consolidation phase. BJ’s counts were high enough to start the last half of this phase. One of the chemo drugs he was given required infusion of IV fluids before getting the drug, and continued for 6 hours afterward. So, we were at the clinic/hospital for 10 1/2 hours yesterday. He was Read More
11/23/2012 Day 29…Part 2 of Consolidation Phase
On November 24, 2012 by Michelle LoveBJ had clinic early yesterday morning. It would have been a very long clinic day, but his counts weren’t high enough to get his chemo treatments. He was happy about that, because it means a week break for him.We’ll try again next week…. Read More
Happy Thanksgiving
On November 22, 2012 by Michelle LoveBeing thankful….For BJ and Carly, and the opportunity to love them every dayFor our family, real and adopted For friends who show the meaning of true friendship For the compassionate medical staff …and those who cried with me after BJ’s anaphylactic reactionFor everyone who caresFor all the cares turned into action …prayers, thoughts, time, gifts, meals, cards, Read More
11/16/2012…day 22 of consolidation
On November 16, 2012 by Michelle LoveBJ had clinic this morning. He wasn’t as anxious about today’s procedure and treatment. The spinal tap went fine and he had no problems with the anesthesia today. We went back to the clinic afterward for his IV chemo. His counts are low and his immune system is deficient, but today went well. Read More
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