Soup in the summer. Whatever he wants.
On August 10, 2015 by Michelle LoveBlood is amazing!!…the 2 units that BJ received on Thursday made him feel so much better. He’s still feeling weak, but he could walk a little further without getting short of breath and nauseated. Yesterday he said he thought it might be lower again because he was beginning to feel more tired and weak again. Read More
Blood and Platelets again
On August 6, 2015 by Michelle LoveBJ had an appointment this morning to check his blood counts. He is very weak. It is expected that he will need blood and platelets throughout the next few weeks. His platelet count was only 10,000 so he received a unit of platelets. (He just had a unit 4 days ago.) His hemoglobin was also Read More
Zero white blood cells and more platelets
On August 3, 2015 by Michelle LoveThe Ara-C from the last 2 weeks has done exactly what they expected it to do. Lab work from this morning showed that BJ’s white blood cell count is zero. For the next 3 weeks or so, we’ll be hypersensitive in checking for fevers and making sure he doesn’t get sick. He has no working Read More
Going HOME!
On August 1, 2015 by Michelle LoveGoing home!! See you next time LCH 11 family! Thank you for taking excellent care of BJ! ❤ Read More
Final Dose of Ara-C chemo
On August 1, 2015 by Michelle LoveBJ received his final dose of high dose Ara-C around 8am this morning, and just a few minutes ago, got 3 Erwinia shots (112th, 113th, 114th lifetime Erwinia shots). One more hour to make sure he doesn’t have an allergic reaction to the Erwinia, and we get to go home! #BJStrong Read More
Deja vu
On July 31, 2015 by Michelle LoveBack at LCH for the same regimen as last week. He’s currently getting his 2nd 3-hour dose. Thankfully, BJ wasn’t as nauseated as last week, but he has already developed the Ara-C rash again. Hopefully this chemo will make a difference in his MRD. The week-long daily chemo (cytoxan and etoposide) he had a month Read More
Sleep my baby, sleep.
On July 31, 2015 by Michelle LoveJust sitting here watching him sleep. Listening to him breathe. I think he may be dreaming, and I wonder if he’s running to catch a football or making that 3 pointer, or reeling in that 20 pound flounder… just having a normal summer like any other 14 year old kid, carefree and happy….Sleep my baby Read More
He doesn’t realize how tough he is
On July 28, 2015 by Michelle LoveBJ had a rough weekend. Every few hours, day and night, he needed eye drops, Zofran or Atarax. He finally felt like eating something Sunday afternoon, but that was curbed by nausea. This morning, he still felt very weak, and standing for short period of time was exhausting for him. At the clinic today, he Read More
High dose Ara-C chemo
On July 24, 2015 by Michelle LoveToday, BJ is halfway through an intense in-patient chemo infusion schedule that started yesterday evening. He’s getting high dose Ara-C, which infuses for 3 hours every 12 hours, for four doses. He was struggling in the early hours this morning with extreme nausea and chills. The side effects on this medication are pretty rough. It will Read More
Thanks Panther’s coach!
On July 20, 2015 by Michelle LoveMuch thanks to Carolina Panthers Head Coach, Ron Rivera, for putting a giant smile on my child’s face last week just when he needed it! #CureForBJRound2 #keeppounding #giveblood#BeTheMatch #NEGU#IamLCH #childhoodleukemia#childhoodcancer #morethan4 #mollyskids#panthers#RonRivera #BJStrong Read More
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