Chemo for Halloween
On October 31, 2015 by Michelle LoveBack at Duke Children’s Health Center for another long day of fludarabine and cytoxan infusions and the required 4 hours of post-hydration. Before we left here yesterday, BJ got a 2nd unit of platelets. The first unit had only bumped his count to 13k, so it was still too low. He was very tired last Read More
October 30, 2015, Back in Durham
On October 30, 2015 by Michelle LoveWe’re back in Durham, arriving late last night to the Ronald McDonald House. BJ’s port has been leaking blood since being de-accessed yesterday for his platelet infusion. He’s had a port in his upper right chest since Sept 2012 when he was first diagnosed with Leukemia. ((Just a little description of what a port is…it’s Read More
October 29, 2015
On October 29, 2015 by Michelle LoveBJ had a clinic appointment this morning to check his blood counts. His platelet count had dropped again, this time to 8k, so he is getting a platelet transfusion today. His white blood cell count is up to 1k today, and 22% of those are leukemia blast cells in his blood stream. He is also Read More
October 27, 2015
On October 27, 2015 by Michelle LoveGlad to be able to have good news! BJ has been much better today. His platelet count held steady, and he didn’t need a transfusion today. The CT scan he had late this afternoon showed marked improvement in his lungs from the last scan on Sept 5. This was wonderful news, because we’ve been wondering Read More
October 26, 2015 Clinic appointment at Duke
On October 26, 2015 by Michelle LoveBJ had a clinic appointment at Duke today for labs and baseline tests before the treatment portion of the trial. He still isn’t feeling well today. His platelet count had dropped again so he just finished getting a unit. He has lost 8 pounds since we were here last on 9/15. His lips are cracked Read More
Fuzzy hugs are some of the best hugs
On October 25, 2015 by Michelle LoveBJ wasn’t feeling well last night or this morning. He didn’t have a fever, but was extremely tired and weak. He looked very pale. Even Charlie Brown knew BJ needed a hug. With the way he looked, I didn’t think he should wait until tomorrow’s appointment to get checked out. After calling after hours, Dr. Read More
October 24, 2015
On October 24, 2015 by Michelle LoveBJ was happy to get home yesterday. He actually ate half of a cheeseburger that Darrell grilled for dinner last night. That was more than he has eaten in the past 4 days combined. He is still very tired and the headache comes and goes, but is feeling better than earlier this week. He had Read More
Re-fuel Platelets
On October 23, 2015 by Michelle LoveBJ is getting tanked up on platelets again and then he will be discharged! His temp is has been consistently slightly elevated but staying below the 100.4 mark, so it’s technically not a fever that would keep him here. He hasn’t eaten, didn’t get much sleep again last night, and he’s still very tired, but Read More
October 22, 2015 Smiles
On October 23, 2015 by Michelle LoveFeeling better tonight…love that smile! …and LOOK! His hair is coming back! #Phil413 #CureForBJRound2 #BJStrong #fighter Read More
No One Fights Alone
On October 22, 2015 by Michelle LoveBJ developed a fever of 101.5 last night, and was directly admitted to the hospital. We got here about 12:30 this morning. He didn’t sleep much after that, but he is sleeping now. His doctor thinks that this fever is due to how his body is processing the killing of leukemia cells, instead of being Read More
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