Category: Childhood cancer trauma

Childhood Cancer . Childhood cancer trauma . Childhood Leukemia

CART-19 = Pure Hell

On November 5, 2018 by

On this day November 5, 2015, BJ received his 200,000 modified T-cells as part of the CART-19 clinical trial at Duke. That day was the beginning of a horrible ending…but we were so hopeful that it was his cure. We were naively excited. It was pure hell. 106 degree fevers for days on end, delusions Read More

Childhood Cancer . Childhood cancer trauma . Memories

Christmas for a kid with cancer

On December 27, 2017 by

Dec 27, 2013…BJ, 12 years old, had to arrive very early at Levine Children’s Hospital to have surgery. His original port-a-cath had developed a sheath over the end of the line, and it had to be replaced. He was just over a year into treatment at this point and had already been through hell and Read More