64 days inpatient – Friday, January 22, 2016
On January 22, 2016 by Michelle LoveFriday, January 22, 2016…64 days in the hospital BJ has been feeling good since the continuous blinatumomab infusion began Wednesday. He was awakened every 2 hours Wednesday night for neuro checks and vitals, so he was very tired yesterday. Yesterday evening, he spiked a fever of 101.5. Blood was drawn from his port and from Read More
Day 1 of Blinatumomab treatment – Wednesday, January 20, 2016
On January 20, 2016 by Michelle LoveWednesday, January 20, 2016……62 days in the hospital…..Day 1 of Blinatumomab treatment Today is a big day. BJ was moved to the PICU room this morning. The new immunotherapy, blinatumomab, started about 11am. They will monitor him closely for the next few days for any side effects. The infusion is continuous and is running through Read More
PICC line placement – Monday, January 18, 2016
On January 19, 2016 by Michelle LoveMonday, January 18, 2016…60 days in the hospital BJ’s procedures went very well today. There were several delays and some confusion as to what location would be used for the procedures (adult hospital or children’s hospital), but we ended up in the adult side of the hospital. BJ finally went down to the Interventional Radiology Read More
59 days inpatient – getting more blood and platelets – Sunday, January 17, 2016
On January 18, 2016 by Michelle LoveSunday, January 17, 2016…59 days in the hospital BJ had a good day today although he was very tired. He got a unit of platelets this morning, because his platelet count was at 3k. That is a record low. His hemoglobin had dropped as well, and he is getting 2 units of blood tonight. He Read More
Time out for a Panthers Pep Rally – Friday, January 15, 2016
On January 16, 2016 by Michelle LoveFriday, January 15, 2016…57 days in the hospital We are witnessing God’s work every day. BJ had a CT scan this morning to see what his lungs look like now. Ten days ago, the CT scan showed devastating news. Today, the pleural effusion is almost gone in his lungs, and the 5cm mass in his Read More
Pet Therapy with Sadie Mae – Wednesday, January 13, 2016
On January 14, 2016 by Michelle LoveWednesday, January 13, 2016…55 days in the hospital Your prayers are really working. BJ has dramatically improved since last week. He isn’t on oxygen. His breath sounds are improved in both lungs. His heart rate is more normal for him. His respiratory rate is normal. They actually took him completely off the monitors. He is Read More
It’s been a good day – Monday, January 11, 2016
On January 12, 2016 by Michelle LoveMonday, January 11, 2016…53 days in the hospital BJ has had another good day yesterday and today. He has been up, and walking, the same distance as Saturday, but no stopping to rest in the middle. He is really pushing himself with physical therapy and stretching to make walking less painful. He even had a Read More
A short walk – Saturday, January 9, 2016
On January 10, 2016 by Michelle LoveSaturday, January 9, 2016…51 days in the hospital BJ had a good day! He slept well and is feeling good today. He ate cereal for breakfast, a slider cheeseburger for lunch and broccoli cheese soup for dinner. He even ate 2 packs of cream cheese and chives crackers overnight. His labs looked about the same Read More
Dog Napping – Friday, January 8, 2016
On January 9, 2016 by Michelle LoveFriday, January 8, 2016….50 days in the hospital BJ had a good day. He got up and used a walker (with assistance) to get to the scale and back to his bed. It was about 16 feet total. He’s eating much better. There’s a Panera bread in the main hospital and he ate a whole Read More
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