Childhood Cancer . Childhood Leukemia
Monday (Day 32 post CART cell infusion…18th day in the hospital)
BJ didn’t sleep very well last night. He was awake off and on all night needing to re-position himself. Around 3am, his urine started to have visible blood in it, and by 8am, it looked like nothing but blood. His abdomen and back were hurting too. He started receiving a transfusion of platelets to counteract and to help clot whatever is actively bleeding. He has received several units of platelets today. Doctors ordered some viral tests that should come back tomorrow, as well as a culture to see if it’s an infection. They also ordered an abdominal ultrasound. He was in a fair amount of pain, and was given Tylenol, but it didn’t do much, so he received a dose of Fentanyl. The Fentanyl helped him get a little bit of sleep this morning. His hip is also still very sore from the bone marrow biopsy.
BJ is talking a little better today. I understood most of what he said to me today without him having to write anything. It was SO awesome to hear him say “mom”.
Besides not being able to get comfortable, BJ also was having trouble sleeping because he was worried about his labs again. He asked the nurse about what his counts were, and she brought in the copy of the results from the midnight blood draw. His white blood cell count was 43.1k. I was relieved that it hadn’t doubled again, and he was visibly relieved as well. We talked about it again…out of our control…it’s in God’s hands….worrying won’t change the outcome. (That last part needs to be drilled into my head.) For some reason, this morning, I had some peace about it all. Maybe it was because I can’t cry all day for 2 days in a row. Maybe it was because my heart sister was here with me today, or all of the prayers that are lifting us up each day. Maybe I have convinced my momma’s heart, at least for the moment, that what I believe to be true really is true, even when it’s my child in question. Whatever it was, today was less emotional. Even when his afternoon labs showed 64.7k white blood cells, I took a deep breath and reminded myself of what is true. BJ said it best … “Who knows what will happen.”
Monday (Day 32 post CART cell infusion…18th day in the hospital)
On December 7, 2015 by Michelle LoveMonday (Day 32 post CART cell infusion…18th day in the hospital)
BJ didn’t sleep very well last night. He was awake off and on all night needing to re-position himself. Around 3am, his urine started to have visible blood in it, and by 8am, it looked like nothing but blood. His abdomen and back were hurting too. He started receiving a transfusion of platelets to counteract and to help clot whatever is actively bleeding. He has received several units of platelets today. Doctors ordered some viral tests that should come back tomorrow, as well as a culture to see if it’s an infection. They also ordered an abdominal ultrasound. He was in a fair amount of pain, and was given Tylenol, but it didn’t do much, so he received a dose of Fentanyl. The Fentanyl helped him get a little bit of sleep this morning. His hip is also still very sore from the bone marrow biopsy.
BJ is talking a little better today. I understood most of what he said to me today without him having to write anything. It was SO awesome to hear him say “mom”.
Besides not being able to get comfortable, BJ also was having trouble sleeping because he was worried about his labs again. He asked the nurse about what his counts were, and she brought in the copy of the results from the midnight blood draw. His white blood cell count was 43.1k. I was relieved that it hadn’t doubled again, and he was visibly relieved as well. We talked about it again…out of our control…it’s in God’s hands….worrying won’t change the outcome. (That last part needs to be drilled into my head.) For some reason, this morning, I had some peace about it all. Maybe it was because I can’t cry all day for 2 days in a row. Maybe it was because my heart sister was here with me today, or all of the prayers that are lifting us up each day. Maybe I have convinced my momma’s heart, at least for the moment, that what I believe to be true really is true, even when it’s my child in question. Whatever it was, today was less emotional. Even when his afternoon labs showed 64.7k white blood cells, I took a deep breath and reminded myself of what is true. BJ said it best … “Who knows what will happen.”
Recent Comments