November 13, 2015 Day 1 of Inpatient at Duke Children’s Hospital

BJ had to go back to clinic today for the daily labs. He was slow moving today, because his joints hurt when he moves. Walking hurts, pushing himself up from lying down hurts, chewing hurts. His doctor told us that it was most likely due to the crowding of leukemia in his bone marrow, pushing on the nerves, which causes the pain. Tylenol takes just the edge off, and allows him to tolerate what’s left. He had also been running a low temp Thursday night and into this morning. He just didn’t feel very good today. He is still very tired and doesn’t have much energy. He did sleep a little better last night, knowing that we now have a plan, but he needs more sleep.