Day 8 of 29

We got to Levine’s Pediatric Hematology and Oncology at 8:30am. BJ got his IV port accessed (which was very uncomfortable, despite the numbing cream I put on him earlier), and he received some IV fluids. We went down to the hospital and waited for him to be taken back for a spinal tap with chemo. They inject chemo (Methotrexate) into his spinal fluid every other Friday. We finally got back into the clinic around 1:30, and I got him some lunch. He ate 2 chick-fil-a sandwiches, large fries, a diet dr. pepper, and a small cookies and cream milkshake. He was almost finished eating all that when the chemo finally came up from the pharmacy. It took about 30 minutes for it to infuse and we finally got to leave about 3pm.  What a long day.

The chemo makes him nauseated, and generally just doesn’t feel good about 2 hours afterward, so it was a quiet night at home.

Written by Michelle Love

I'm a mom with a heart split between my child on earth and my child in heaven.